We finally had our appointment to check on our little guy’s
heart. We knew we were looking at a heart defect, but didn’t know exactly what
was going on with it. Our little guy was moving all over the place and
literally never stopped moving. The doctor was so surprised at how much he
actually moves. It was cute and funny for a while, but it caused the ultrasound
to go twice as long. We were doing the ultrasound for a solid two hours, so
they could try and get all the images they needed. Every time they would go to
capture the image, he would jump in a different direction. The doctor finally ended the ultrasound and we
sat down to discuss all the results. She saw two major complications that will
need to be addressed. I can’t even begin to fully explain what we are looking
at, but the cliff notes version of it all is that he has a hole in the bottom
chambers and his aorta is small. She was still a little unclear on the full
picture because he wouldn’t sit still for the ultrasound and she was unable to
get a clear look at things. She was able to give us a slight game plan at what
we are looking at treatment wise once he is born. I don’t want to dwell on that
too much at this point since things are still a little unclear. We left the appointment feeling very overwhelmed. There was a lot of information thrown at us and it took some time to process.
We have an
appointment in 3 weeks for a follow up where she is going to take another look
and hopefully come up with a firm diagnosis. Hopefully he will cooperate and
sit still a little better. Eventually we will meet with the surgeons and get
their perspective and game plan on surgeries and have an even more clear
picture on what we are going to be looking at once he is here. It’s scary. For
so long we have focused solely on the threat of the cystic hygroma. At our last
appointment, we found out that the CH had gone from a 3.6 to a 2.1 and looked
to be resolving! Our new hurdle is his heart. I pray that his heart continues
to grow and that his complications heal or at least get better. God has been
hearing and answering our prayers so far and I pray that he continues to
protect and heal our baby.
