It has been such a good couple of days for Brody. Since getting the breathing tube our we have been able to get more aggressive with everything and really make some progress. Yesterday they were able to take out his pacemaker wires and chest tubes. His chest tubes were still draining quite a bit but the surgeon wanted them out to help with his rehabilitation and thinks him being up more will be more beneficial. He has not been a huge fan of his BiPap/CPAP mask, but who would. The mask here covers his nose and his mouth and straps across his head. The positioning is problematic because it is so heavy and often pushes down his nose and the straps push down towards his eyes. It is a constant struggle, especially with him trying to be awake more to keep it in a good position. It was definitely adding to his irritability which is why it is nice to say we have ditched the CPAP mask and have been able to transition to a high flow nasal cannula. They started out wanting to switch to high flow intermittently, but his stats have looked so good on it, that he has been able to keep it. Yay!!! In addition to the oxygen switch, they were able to remove an arterial line and are working on starting his formula again. It's so nice watching them remove machines from his room because they don't need them anymore. I am not quite sure from here what major plans they have for him this weekend, but I think it will include increasing his formula tolerance and making sure he is sitting in his chair as much as possible. I would love for him to lose the nasal cannula this weekend, but we will see. I think regardless of the plan, it is going to be an active weekend. He is acting much more like himself with lots of movement in the bed and just wanting someone sitting next to him. Absolutely buddy, anything you want! It's crazy to think how much can change in just one short week.
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